Ussher M, Papachristou I & Giatra N (2013) Impact of dementia progression on food-related processes: A qualitative study of caregivers' perspectives. American Journal of Alzheimer's Disease and Other Dementias, 28 (6), pp. 568-574. https://doi.org/10.1177/1533317513494456
As dementia progresses, one area that can help maintain connection and memories with others is within the food domain. There is little research in this area particularly from the informal caregivers' perspectives. Therefore, a qualitative study was conducted to explore the impact of dementia progression on food-related processes from the perspectives of informal caregivers. The aim of the study was to document the methodology used and to disseminate the findings to researchers, care providers, and policy makers. A total of 10 men and 10 women caregivers of those with dementia underwent a semistructured interview. Transcripts were analyzed using thematic analysis. The caregivers' narratives indicated a set pattern of decline, with food shopping being the first ability to decline, followed by food preparation and the ability to eat. Caregivers adapted to their food roles, for example, by becoming responsible for financial issues. These adaptations were described as stressful yet satisfying as food care was seen as an important social time. Educating caregivers' about the likely adaptations to food processes may increase food satisfaction in both the parties. © 2013 The Author(s).
American Journal of Alzheimer's Disease and Other Dementias: Volume 28, Issue 6