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Article

Palliative care for people with advanced liver disease: A feasibility trial of a supportive care liver nurse specialist

Citation
Kimbell B, Murray SA, Byrne H, Baird A, Hayes PC, MacGilchrist A, Finucane A, Young PB, O'Carroll R, Weir C, Kendall M & Boyd K (2018) Palliative care for people with advanced liver disease: A feasibility trial of a supportive care liver nurse specialist. Palliative Medicine, 32 (5), pp. 919-929. https://doi.org/10.1177/0269216318760441

Abstract
Background:  Liver disease is an increasing cause of death worldwide but palliative care is largely absent for these patients.  Aim:  We conducted a feasibility trial of a complex intervention delivered by a supportive care liver nurse specialist to improve care coordination, anticipatory care planning and quality of life for people with advanced liver disease and their carers.  Design:  Patients received a 6-month intervention (alongside usual care) from a specially trained liver nurse specialist. The nurse supported patients/carers to live as well as possible with the condition and acted as a resource to facilitate care by community professionals. A mixed-method evaluation was conducted. Case note analysis and questionnaires examined resource use, care planning processes and quality-of-life outcomes over time. Interviews with patients, carers and professionals explored acceptability, effectiveness, feasibility and the intervention.  Setting/participants:  Patients with advanced liver disease who had an unplanned hospital admission with decompensated cirrhosis were recruited from an inpatient liver unit. The intervention was delivered to patients once they had returned home.  Results:  We recruited 47 patients, 27 family carers and 13 case-linked professionals. The intervention was acceptable to all participants. They welcomed access to additional expert advice, support and continuity of care. The intervention greatly increased the number of electronic summary care plans shared by primary care and hospitals. The Palliative care Outcome Scale and EuroQol-5D-5L questionnaire were suitable outcome measurement tools.  Conclusion:  This nurse-led intervention proved acceptable and feasible. We have refined the recruitment processes and outcome measures for a future randomised controlled trial.

Keywords
Liver failure; palliative care; supportive care; care planning; nurse specialist; feasibility trial; generalist palliative care

Journal
Palliative Medicine: Volume 32, Issue 5

StatusPublished
Author(s)Kimbell, Barbara; Murray, Scott A; Byrne, Heidi; Baird, Andrea; Hayes, Peter C; MacGilchrist, Alastair; Finucane, Anne; Young, Patricia Brookes; O'Carroll, Ronan; Weir, Christopher; Kendall, Marilyn; Boyd, Kirsty
Publication date01/05/2018
Publication date online08/03/2018
Date accepted by journal08/03/2018
URLhttp://hdl.handle.net/1893/26861
PublisherSAGE
ISSN0269-2163
eISSN1477-030X

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