Article

Taking time: The temporal politics of dementia, care and support in the neighbourhood

Details

Citation

Ward R, Rummery K, Odzakovic E, Manji K, Kullberg A, Keady J, Clark A & Campbell S (2022) Taking time: The temporal politics of dementia, care and support in the neighbourhood. Sociology of Health and Illness. https://doi.org/10.1111/1467-9566.13524

Abstract
Dementia is a global health challenge and currently the focus of a coordinated international response articulated through the notion of ‘dementia-friendly communities and initiatives’ (DFCIs). Yet, while increasing research attention has been paid to the social and spatial dimensions to life with dementia in a neighbourhood setting, the temporalities of dementia have been largely overlooked. This article sets out different aspects of the lived experience of time for people with dementia and unpaid carers, before exploring the temporal politics of formal dementia care and support. The authors show that time is a site for material struggle and a marker of unequal relations of power. People with dementia and unpaid carers are disempowered through access to formal care, and this is illustrated in their loss of (temporal) autonomy and limited options for changing the conditions of the care received. The authors advocate for a time-space configured understanding of the relationship with neighbourhood and foreground a tempo-material understanding of dementia. Set against the backdrop of austerity policy in the UK, the findings reveal that ongoing budgetary restrictions have diminished the capacity for social care to mediate in questions of social justice and inequality, at times even compounding inequity.

Keywords
Public Health, Environmental and Occupational Health; Health Policy; Health (social science)

Notes
Output Status: Forthcoming/Available Online

Journal
Sociology of Health and Illness

StatusIn Press
FundersEconomic and Social Research Council and National Institute for Health Research
Publication date online05/09/2022
Date accepted by journal27/06/2022
PublisherWiley
ISSN0141-9889
eISSN1467-9566

People (3)

Dr Andy Clark

Dr Andy Clark

Lecturer in Scottish History, History

Professor Kirstein Rummery

Professor Kirstein Rummery

Professor, Sociology, Social Policy & Criminology

Professor Richard Ward

Professor Richard Ward

Professor of Dementia, Ageing, Community, Dementia and Ageing