Article

Exploring the views of patients' and their family about patient-initiated follow-up in head and neck cancer: a mixed methods study

Details

Citation

Lorenc A, Greaves C, Duda J, Brett J, Matheson L, Fulton-Lieuw T, Secher D, Rhodes P, Ozakinci G, Nankivell P, Mehanna H & Jepson M (2022) Exploring the views of patients' and their family about patient-initiated follow-up in head and neck cancer: a mixed methods study. European Journal of Cancer Care. https://doi.org/10.1111/ecc.13641

Abstract
Objective The objective of this work was to explore head and neck cancer (HNC) patients' and their family members' views on acceptability and feasibility of patient-initiated follow-up (PIFU), including concerns and anticipated benefits. Methods Patients were recruited from UK HNC clinics, support groups and advocacy groups. They completed a survey (n = 144) and/or qualitative interview (n = 30), three with a family member. Qualitative data were analysed thematically, quantitative data using descriptive statistics. Results Preference for follow-up care in HNC was complex and individual. Many patients thought PIFU could beneficially reallocate health care resources and encourage self-management. Patients' main concerns with PIFU were losing the reassurance of regular clinic appointments and addressing mental well-being needs within PIFU, possibly using peer support. Patients were concerned about their ability to detect recurrence due to lack of expertise and information. They emphasised the importance of a reliable, direct and easy urgent appointment service and of feeling supported and heard by clinicians. Patients believed family and friends need support. Conclusion PIFU may be feasible and acceptable for certain HNC patients, providing it addresses support for mental well-being, provides quick, reliable and direct clinician access and information on “red flag” symptoms, and ensures patients and their caregivers feel supported.

Keywords
head and neck cancer; patient education; patient information; psychological; supportive care; users

Notes
Output Status: Forthcoming/Available Online

Journal
European Journal of Cancer Care

StatusIn Press
FundersNIHR National Institute for Health Research
Publication date online31/07/2022
Date accepted by journal06/06/2022
URLhttp://hdl.handle.net/1893/34489
ISSN0961-5423
eISSN1365-2354

People (1)

People

Professor Gozde Ozakinci
Professor Gozde Ozakinci

Professor in Health Psychology, Psychology