We are a team of researchers who want to help children with cystic fibrosis (CF) to stay well and to live a full life – that is why for the last nine months we have been developing a short film in partnership with a group of parents of children with CF to help encourage families and carers to stick to their child’s chest physiotherapy routine.
The short film includes documentary footage of families of children with CF talking about their experiences of CF in general and chest physiotherapy. We would now like to see if this film helps families who have a child with CF and for this we are looking for some families to test it out for us.
Recruitment is now closed and the study is coming to an end. Please check this website for a copy of the project report and any future studies.
Cystic Fibrosis (CF) is an inherited disease which mainly affects how the lungs and digestive system work. Around 1 in 2,500 children are born with CF and it is the most common inherited disease in the UK. Just now there is no cure for CF so treatment focusses on easing the symptoms which include thick mucus made by the lungs. This mucus is difficult to clear which can lead to infection and long term damage of the lungs. There are a number of treatments that try and reduce the production of mucus, including drug treatments. Chest physiotherapy and airway clearance techniques are a major part of the daily treatment to clear the lungs and airways. Although chest physiotherapy is important, only 50% of parents and children keep to their recommended physiotherapy routine. Parents and carers and their young children find it difficult to stick to their physiotherapy routine for a wide range of reasons, for example, it makes children feel ‘different’ from their friends and they find it boring and sometimes painful and uncomfortable.
For more information about taking part Karen Semple NMAHP RU
Unit 13 Scion House
Stirling University Innovation Park
FK9 4NF 01786 466462 firstname.lastname@example.org
The study is funded by the Chief Scientist Office and the Cystic Fibrosis Trust. It is being carried out by the NMAHP Research Unit, University of Stirling, in partnership with the Cystic Fibrosis Trust, NHS Lothian, and the Universities of Dundee, Aberdeen and New South Wales (Australia), Glasgow Caledonian University, and University College London.