Jenny’s Diary is a free to download booklet and a set of postcards aimed at supporting conversations about dementia with people who have a learning (intellectual) disability.
Conversations about dementia are never easy. All dementia strategies in the UK state that everyone is entitled to know of their diagnosis, not only as a human rights issue but as part of developing appropriate and individualised post-diagnostic support.
Currently, there is limited guidance on how to talk about dementia to an individual with a learning disability. There is typically a fear of what will be understood, uncertainty over the words to use, and concern over how to cope with the response.
Jenny’s Diary takes a three-step approach to address this:
The accompanying postcards give examples of activities that Jenny engages within a typical week.
They can be printed and passed around, held closer to look at if needed, viewed on a computer screen or stuck on a wall at home.
The cards are larger versions of images in the book making them easier to use as discussion topics.
Jenny's Diary is the Self Management Award Winner 2017
Jenny's Diary was supported by Alzheimer's Society dissemination grant number 225