Research output

Article in Journal ()

Distress, concerns and unmet needs in survivors of head and neck cancer: A cross-sectional survey

Citation
Wells M, Cunningham M, Lang H, Swartzman S, Philp J, Taylor L & Thomson J (2015) Distress, concerns and unmet needs in survivors of head and neck cancer: A cross-sectional survey, European Journal of Cancer Care, 24, pp. 748-760.

Abstract
The aim of this study was to identify the distress, unmet needs and concerns of head and neck cancer (HNC) survivors in the first 5years after treatment. Two hundred and eighty HNC survivors from three Scottish health boards responded to a cross-sectional postal survey in 2011. Questionnaires included the Distress Thermometer, Patient Concerns Inventory (PCI) and an adapted version of the PCI to measure unmet needs. One-third of the survivors had moderate or severe levels of distress, and 74% had at least one unmet need. The most common concerns and unmet needs included oral and eating problems, fear of recurrence and fatigue. Multivariate analysis revealed that being younger, out of work (not retired), ever having had a feeding tube fitted, having a greater number of comorbidities and living alone were associated with higher levels of distress, concerns and unmet needs. The diversity of concerns and unmet needs identified in this study highlights the importance of holistic needs assessment as part of follow-up care for HNC survivors with tailoring of support for particular concerns. Specific information resources and self-management strategies are required to help HNC survivors with the practical and functional consequences of HNC treatment.

Keywords
unmet needs; concerns; head and neck cancer; survivors; Patient Concerns Inventory; Distress Thermometer

StatusPublished
AuthorsWells Mary, Cunningham Margaret, Lang Heidi, Swartzman Samantha, Philp Julie, Taylor Lesley, Thomson Jane
Publication date09/2015
Publication date online07/08/2015
Date accepted by journal17/07/2015
PublisherWiley-Blackwell
ISSN 0961-5423
LanguageEnglish

Journal
European Journal of Cancer Care: Volume 24

© University of Stirling FK9 4LA Scotland UK • Telephone +44 1786 473171 • Scottish Charity No SC011159
My Portal